Mount Up, Keep your fork, the best is yet to come...

I wish I had a better update for you, but I really don't. I have had an amazing experience tho though my roughest week yet.

Last Saturday, I walked out into my back yard & looked up to the sky asking God, "what do you have for me today?" With goosebumps and the deepest of emotion (tho saddened that you can't possibly experience this through just words)...a seemingly 8 foot span of wings came from behind me and launched into the skies above. I could see the details of the white hair on his head, the yellow beak, and the eye of this large beautiful creature we call the bald eagle. The most breath-taking moment to say the least...and the words "mount up" was whispered into my being as I recited the words to myself from Isaiah 40:31. I always get what I call a "word" for the season to come...and this is it. I am ecstatic to see what is to come. History in our family has proven it doesn't come without trials and tribulation, but the after...the best is yet to come.

Sunday, our pastor presented a message by handing us all plastic forks. Sharing the story many of you have probably already heard about the lady whom was given the notice that her life was coming to an end. She met with her pastor to give him the details of what she wanted at her funeral. The songs, Scriptures, etc... and that she wanted to be buried with a fork. She said, you know when you go to dinner & the waitress tells you to keep your fork...why? Because the best is yet to come...it's the dessert. Knowing in Faith that no matter what is going to happen next, the best really is yet to come when one has eternity coming. If you're alive, your story isn't done & He isn't done with you yet...grab the fork!!

Monday, I head to the PCP to find out the other details of my MRI findings as the ophthalmologist stated it was out of his speciality, but that I didn't have MS like he was questioning with my symptoms. That last update is here. There's several words I'm going to put here, but nothing is yet confirmed or has been discussed in detail at the time of writing this. I definitely have Optic Neuritis, and that is why we are on the search to find the root of it. The doctor handed me my report, and said...I'm sorry but I just don't know. We need to get you to a rheumatologist and neurologist to go over these findings. He looked me straight in the eyes and said, "have you been diagnosed with lupus?". I said no, he stated that I have the significant sign of the butterfly rash on my face. I said, ohh I was told I had rosacea...he said, I think you've been misdiagnosed. Let's get some lab work done to see if we can rule that out. An ALA test, along with others. This blood work is what I'm awaiting as I type. Along with this rash, the MRI findings consist of a 7mm nonspecific matter in the mid-brain, dural ectasia of the brain (this is what caused the hole in K's skull), mild sinus disease, psuedotumor celebri, empty sella turcica, and the need to rule out papilledema. He would get me scheduled & let me know the lab results.

On the ride home, I was reminded by a small voice..."Mount Up"!

Tuesday, I was excited for this day because this was the day to go back to the eye dr to get my new prescription for "getting older" bifocals. I just knew if I had optimal level before me, it would relieve some of the stress I was having to put on myself just to function daily things. This day ended up becoming the worst day yet. I felt what is like a nerve coming out of my brain running down my spine, twisting & squeezing it like a boa-constrictor. I had went almost a year without any migraines doing my daily proactive regime to keep them at bay...this day would be the day that didn't work. I had a women's group to lead after the appointment, and I could barely drive much less participate. I couldn't order my glasses because I couldn't stand there long enough in the light to look at any much less think about the details they needed to discuss. I left, found a parking lot and prayed. I said good grief, if Jesus could bare the cross...the least I could do was show up for these ladies. I showed up, handed off the reigns to another to read; and their fellowship & love got me thru. I crashed in my dark bedroom for the next two days. The pain in my back, the numbing & burning of my face, the dizziness, and I hear...Mount Up!

Wednesday & Thursday are a blur really...until Thursday evening I had found some relief. Enough that I got to go with my husband to kick start another fellowship group for men & women at church. Don't think I don't know the enemy is also at work here trying to detour us/me from doing what we know we're called to do. He'll throw marriage darts, kid behavior darts, financial, emotional, and now physical darts to detour us. Nope, I'm not having it!

This morning...I've got ice wrapped around my neck and anointed (oil running down the head) myself with M-grain on the side that hurts & Stress Away on the side that doesn't. I'm able to pull off this blog with that, so this morning I'm in a better place. This has been so random & without rhyme or reason. Until I know more...every moment is unpredictable at this point.

Significant Novembers...

Every day I wake I have a joyful tear that rolls down my face because I get to continue to look my son in the eyes. I am more than thankful. See this time last year, I thought I was going to be headed down the path so many I know have already taken...and we had to jump onto a rollercoaster I didn't give permission to be on. You can read about that journey starting here. 

On the 2nd of November this year, Rick & I celebrated 16 years of being back together...that's another story for another day. No, not our wedding anniversary but being back in each others lives. It's also the same week a year ago that our son came to me to ask why he had a hole in his head. As I type this, my chest fills with pressure, and then I have to remember...we're not in that storm anymore. We have not only survived the storm, but we are Thriving! Only because of the precious mercy & favor of our Lord whom has given not only K (our son) a significant  & remarkable recovery but us a story of how faith moves mountains. As I've went through the pictures of this last year...wow, just WOW! 

We were loved on by so many people even strangers who didn't know us personally. We were allowed to "know" when the suggestions by the medical teams were not the road we were to take. Thank God, we listened. We now are on a peaceful journey of yet another hope, and by God's creation we are seeing life altering miracles daily. We are utilizing the organic compounds of what was given at the creation of the world, we will continue to do so with such fabulous results, and we are learning to love some new terminology I want to call "PMS" (Phenylpropanoids, Monoterpenes, and Sesquiterpenes). 

That is because this combination offers the following:

First, you clean the receptor sites allowing the proper transfer of hormones, peptides, neurotransmitters, steroids, and other intracellular messengers. (The Phenylpropanoids do that.)

Second, you deprogram or erase the wrong information from cellular memory stored in the DNA. (The Sesquiterpenes take care of that.)

Third, you reprogram the cells with the correct information so they can function properly. (The Monoterpenes do this.)

We are headed down a new road of epigenetics: the study of heritable changes in gene expression (active versus inactive genes) that do not involve changes to the underlying DNA sequence — a change in phenotype without a change in genotype — which in turn affects how cells read the genes.

We were perfectly made...and made with a body that wants, can, and will heal itself if it's just given the "conditions" in-which to do so. Faith...comes by hearing the Word, and on that Faith we build our trust in The One that has directed us down this path of unknown, but so so full of peace. 


Here's the few things he got to do for the first time in his life since surgery on May 8th...
1) ride the tallest (for us) ferris wheel in Branson, MO twice
2) caught his first bass & learned how to fish for them
3) got to see the solar eclipse looking thru a homemade cereal box
4) attend a hot air ballon show & get into the basket
5) he gained another brother-in-law
6) he got to build a dinosaur at build-a-dino
7) attended Science City twice in St. Louis
8) got to ride in an airplane
9) ride in a rental car
10) ride in a trolley
11) he started middle school
12) had the biggest personal firework show in our driveway
13) jumped over into men's shoe sizes
14) off all prescription and OTC medications
15) use dad's table saw
16) had his oldest sister here for weeks instead of days
17) shattered his Ipad (we're doing great without it)
18) got to see baby mice practically be born
19) got to help tear down walls in our home remodel
20) learned how to make homemade soap, scrubs, deodorant, body butter
21) learning how to be a barista at school coffee bar
22) An all day around KS waterfall tour
23) Participate in burial of great grandma's ashes
24) Participated in our church parade 
25) has a thing for girls...Lord, help us!

All is wonderful in the world, until you get the news...

3D Imaging so they could order the implant

We got to learn some new words

The puzzle piece (hole) that will never mean the same 

Helmet to protect the exposed Transverse Sinus until Surgery.

Twins...shaved for surgery

Day after surgery

Day after surgery

Day after surgery: Out comes drain tube

The implant

1 month post op

His first Bass! We were all proud!

Now

The flight, appointments, and... (Pt 1 of 2)

the IEP. On January 9th, we woke at 3:30 am to make it to the airport in time for our 6:30 flight to St. Louis. This was a follow up trip to the NF clinic and Neurosurgeon appointment to discuss multiple things along with the details of surgery. Koda has never be on a plane before tho he did get his first helicopter ride as well as mine this last summer. The security check-in process was a breeze, and quite funny to Koda because I had to take my shoes off and he didn't. He had a touch of anxiety when he had to put his weighted dog through the scanner which meant "let go" and hoped it came out the other end. He didn't have much patience with that process, but did make it through without a meltdown.

So there we sat...2 hours until boarding. What am I going to do with this child for two hours at 4:30 in the morning and no medication to be given until 8am. First, we checked out the coffee shop to be utterly disappointed in what we had ordered. I knew the Ipad had to last until we got home (assuming midnight since we were scheduled to land back home at 10:30), so I took advantage of the charging stations and allowed him to play on the Ipad while waiting. We took breaks to go to the bathroom, look around at the gift shop, and look at the planes out the window.

Then it was time to board with no incidents. He did wonder if he'd get a window seat and had hoped for one. He got it. :) He listened fully to the instructions by the attendant, by even getting out the pamphlet to read about emergency evacuations with the life boats, etc. This told me he had some concern about safety...so I reminded him of the helicopter ride and told him this would feel much different than that taking off and landing.

The take off..."whew, we're going fast. Ohhh, my stomach as we lifted off.", he said. He reminded me real quick, mom we forgot gum...we were supposed to get gum (he had been told this for his ears, but didn't know it to be fact that it was needed). This brought on a bit of anxiety, and I just said, "well, we can't turn around now". Asked him, what are you supposed to do when you are out of control in a situation and cannot do what you want? He said, "take a deep breath, be glad I have a supportive adult with me, and pray". I replied, "Perfect, and I'll pray with you". So he watched out the window as the city got smaller and smaller, he watched the wings, and questioned some of the shaking during turbulence (it was a really windy day). Overall he did fabulous. I couldn't have been more proud of him, his behavior, and attention to all that was around him.

Only what seemed like moments into the flight...we had an emergency on board. A few seats behind us a passenger had become unresponsive, as the attendant was yelling out to everyone asking for a nurse or doctor on board to come assist. I thought to myself first that ohhh no we're going to have to land, but was quickly interrupted in my thoughts by the sweetest voice beside me say, Momma...let's pray for that person right now. I nodded my head in agreement, and he proceeded with the prayer. I cried because I was proud of how quick he responded. Then, continued to cry on how disengaged I was from empathy and how self centered I was. Finally, because the words that only a confident child could say in faith.

We didn't have to make an emergency landing. When it was time to land, the pilot came on (that made Koda's face light up) to let us know that we would not be exiting the plane, but that the paramedics would be coming on to assess the passenger first. Landing gear came down, and Koda watched with amazement how the wing flaps came up to help break our speed. He said my ears do hurt, so can we please get some gum before we get back on tonight? I told him yes. The paramedics came on, assessed, then asked passengers to exit so they could get the sick passenger through the isle. The paramedics had the gentleman in a wheelchair pulled up to our seats so we stayed seated while they got him off. We told the gentleman we'd continue to pray for him, he smiled. I'm so thankful Koda got to experience a person being completely unresponsive to being responsive because then He knew he'd be okay even though he might be sick. Then we got off.

Now the anxiety hits me a bit, where's the car rentals, where's the bathroom, where's ...ohhh, thank God I don't have to go deal with luggage as we only had carry on's. We find that we have to be shuttled to the car rentals, so we get on the shuttle and go. Koda again excited to be the only ones on a shuttle bus, so he can direct the conversation with the bus driver. He takes those opportunities often as he has a lot to say (wouldn't know where he gets that from).

I had never rented a car before, so I was hoping my husband had all this lined out. Sure enough he did...and it was a NICE car. I go to plug in my phone to charge, and realize I had left the charger in my car. I didn't pack it, it was one of those last minute grabs that got thrown up on the dash. How in the heck did I forget my charger? Koda's Ipad charger doesn't work for my Android phone, so I was a bit frantic. The Ipad didn't have a internet connection so couldn't use that. See it was seriously at 3%, and I was in a town where I didn't know where anything was. I couldn't even get to the hospital if I wanted to without GPS. Where the heck is a map? Find a gas station and buy a charger, I thought. So, that's what I did. Well, it was a cheap thing that didn't work really. It couldn't keep up with the GPS on...so I hurried to find a local drug store, Best Buy, or whatever. Found Walgreens...yay, got a charger. Whew!

We are in St Louis at 8:30 with no appointments until 1pm. I gave Koda his meds and we headed to Science City. I will post all the pictures taken from the trip in an album on Simply LOLA Facebook page tomorrow. It was fun, interesting, and Koda got to build a dinosaur at the Build-A-Bear workshop, in-which he named Ripper. All was good. We headed to the hospital and with the first appointment being much of a disappointment; I needed to take a break and chill. So I took Koda to the center lobby of the hospital while between appointments, and let him play while I read.

Second appointment was worse, and this was with the neurosurgeon. He walked in, said "I'm not sure why you're here...I don't have anything for you. I'm glad you had another appointment." Ohhh wait a minute, no we're here to discuss the surgery. I have questions. I know what the plan is. His body language told me quickly while he was looking at his pager while stating he was on call; that he was going to leave the room with us discussing nothing. I said, but what about the dural ectasia, which plan are we going to finalize, and for goodness sake no one has showed me any images. He then quickly became the man I met the first time. Compassion set it, he grabs the computer, and says "here let's look at them". He showed me what the dural ectasia had done. :( What can be done about this, he looked at me and said, "nothing can be done". We don't understand it, we don't know why it happens, all we know is it is uncommon but has a history of showing up in NF patients.

He allowed Koda to take some pictures of the "scary/horror faces" from the MRI scans which will also be included in the album posted to FB. We did decide that plan C which is the final out of 3 different plans would be what we'd go with. This plan includes ordering the implant to perfectly fit the hole. The implant will be attached with a dissolvable screws/joints that will take about a year to completely dissolve. This is so there is nothing to affect with future MRI scans. Koda already has an adult size head, so we're hoping this implant will be able to stay with him. It is possible that Koda's head could continue to grow leaving the implant as a floater, which would cause for another surgery to replace. I still left this appointment very unhappy.

And the rest of the story...

(Part 2 coming tomorrow)

He said, it's just as nasty as cancer...

at some level it's worse because its so complicated. Those were the words from Koda's new plastic surgeon. At some level this comforted me because it let me accept this just isn't a hole in his head that needs to be fixed. It's deeper and way more complicated
than that, there's more to it than just a repair. There's a future that says this could happen again and multiple times. There is not one person alike when it comes to the outcomes of each diagnosed with Neurofibromatosis.

He doesn't appear to have anything wrong

Koda has hit the "rare" part of Neurofibromatosis because NF in and of itself is not a rare disorder. There's no cure at this time though research is showing positive results for problematic growing plexiform neurofibromas (that's just one little slice of one symptom). There's nothing we can do about it, but wait until the next thing happens. It drives me crazy not knowing what all is going on inside my son's body. I've taken life and my health for granted up until this diagnosis...we just assume because we get up, walk, see, hear, do our thing...we're all good. Yeah, that is just not so. In the flash of a moment...bam, it all changes.

No we're not on a death bed at this moment, but that is a very realistic possibility for any of us at any time. Just because we don't see it or feel it doesn't mean there's nothing negative going on. So with every pain, complaint of discomfort; my anxiety jumps thru the roof to "what's going on" with my baby. It doesn't stop, and these past few weeks even up until today...he's got more symptoms of pain and now an unusual growth about the size of a dime in the middle palm of his left hand. He discovered this "new" spot yesterday on our way home from St. Louis. Seriously...what's a mom to do?

So we've made 6 trips totaling over 3600 miles (4 to Kansas City and 2 to St Louis) since Nov 2nd, and we're no where close to done. We go back to Kansas City next week for a MRI of the spine to rule out tumors there due to symptoms he's having, and I'll be getting a call this next week to see what's next in regards to St. Louis. We might have more testing/scans such as an angioplasty right before surgery. We still have a lot to discuss with the neurosurgeon.

Puzzle piece hole is fitting if you know us at all.

So this previous St. Louis trip was for the 3D scan of Koda's skull so they could use for measuring the repair. We were given a suggestion of 3 types of possibilities of the material used to fix the hole. They have to have options because the scan tells them a lot but never tells everything. They'll not know the entire story until they get in there. The NF team did discuss that their concern was the plexiform neurofibroma in his neck is of great concern, and they told the surgeon's "NOT to touch it because they don't want to piss it off". Whew! We've been told forever by each NF doctor we've ever seen to leave that thing alone...and since it's stable; now is not the time to aggravate it. So, they wont. Thank God because I was really concerned of the possible massive bleed out if they had which was discussed by the first set of neuro/plastic surgeons we seen. I'm so glad I went with my gut to take him to St. Louis and not take the first thing thrown at us as the final answer to fix this issue. God has our backs and even more so our son.

Just like the neurosurgeon, the plastic surgeon was compassionate, very honest though he hated saying some of the stuff in front of Koda. I want Koda to know what's going on...it's his body. We realized real quick how much pain Koda doesn't complain about. With tears welling up in his eyes as the surgeon was feeling around; I asked him does it hurt, he said yes it does. Koda, you have to tell us when you hurt. The surgeon felt so bad. My heart cried to see my baby endure like he has. He's nervous and scared, and has every right to be. The plan is to cut over the top of the head from ear to ear in a zigzag style. They will not be removing any skin/hair and skin grafting in new like the 1st set of surgeons said they would be doing. Yay...he won't have a permanent bald spot (at least that is not the plan). The 3 types of material choices; his own skull sliced in half from the top, donated skull bones, or a plastic prosthetic. The attachment will not be steel screws, etc but a material that will dissolve (takes about a year) on it's own after healing. We are confident in what has been discussed so far. Again, much to still discuss (so I clearly understand) with the neurosurgeon.

Koda is not sleeping, we hope to find the upcoming MRI to answer some of this; otherwise back to another sleep study and meds again. Everything is a domino affect from the lack of quality sleep.

I wish I could just list out sometimes all the other distractions and storms overlapping us right now, but that doesn't benefit anyone. I need the storm to calm down so we can focus on the important issue, and that is getting this boy where he needs to be when he needs to be there. Believe me when I say that every nasty dart that can be thrown is being thrown in all areas. I really feel as if I'm drowning in the "other" stuff. I'm ready to go back to "school" being our biggest struggle. Priorities change so quickly. Keep us in your prayers and thoughts, thank you so much for reading our journey!!

In the corkscrew...

of the rollercoaster...but at least I can breathe. The last month has been a continual slamming of information, changed priorities, and different interpretations as if in a multiple car accident; the hitting comes from every angle. I was lost, dizzy, and discombobulated trying to figure out what was the priority. I knew I needed to find a way to get articulated somehow so I could even function one moment at a time.

Just know that each appointment we were told something different, the priorities changed, concerns changed, and even the status of each exam was interpreted different by each medical professional we saw. That right there has been so disheartening...I felt as if I was watching inside out in fast forward, stop, reverse, with tones of mute, too loud, etc. I have been seriously though all these character emotions thousands of times especially since the results came in from the PET and MRI scans. (side note: if you haven't seen this movie; you should. It was a God send in helping Koda figure out self regulation, and a visual of what emotions act/look like. We refer to these characters a lot)

But today, I can say God has shown up and showed off so far. I love him so much for that. First off, let me say I'm pretty disappointed in the radiologist and neurosurgeon team at CMH in KC. I'm thankful though of these frustrations because it proves people are human, and that we CANNOT put our full trust in any such human; we'll always be disappointed to some level.

St. Louis...I almost tense up because of what all I personally felt and we went through while on that trip to the #NF clinic. We met with neurology at 8am. The scans from the CT, PET, and MRI was supposed to have been overnighted to them in time for the appointment...that didn't happen, at least not in time. Thank God, I was proactive and took all the copies with me along with the written reports. These scans consisted of 3000 images. I bet they felt overwhelmed with being slammed with that. I hated it for them, and I really hated it for us because I just knew we wouldn't get the care needed/or that I expected. Our neurologist has moved on to seeing adults, so we're with a new guy (tho we have met him before)...that can make one fill a bit uneasy, right? I was pleased with the time he took tho he didn't have much time to view scans, etc. He clearly stated we'd be seeing the rest of the team. So we did.

Then the nurse coordinator stated they really wanted us to see the neurosurgeon due to being so far away from home, but didn't know if that could happen. They called the coordinating nurse practitioner, and guess what...she came running up from another floor to assess Koda. She went out into the hall and called the neurosurgeon & left a msg. She told us that he was in clinic but trying to see if there was a way somehow he could see K that day. He called, she came back in to tell us to come back at 2pm. (Thank You God!!!! Seriously...we knew we needed to see him but since we didn't have an appointment...it would be a miracle) Miracle happened. Seeing two neurosurgeon's in one week is a bit overwhelming in itself...but so glad to have gotten this 2nd opinion with expertise in NF.

We went to lunch after getting clearance from the other team professionals, so after getting food we headed out for our faithful visit to "Big Foot Monster Truck" facility. That visit was a nice break away from the hospital. Back to the hospital we went...2pm my nerves were heightened with every emotion; this was a God appointment just getting the chance to visit with him. He then spent 1.5 hours trying to load the images, talking with their radiologists so we ended up not seeing his face until 3:30.

By User:Wikid77 (clarifying Gray's image) - Derivative of Wikimedia Image:Gray488.png., Public Domain, https://commons.wikimedia.org/w/index.php?curid=2945470

He  walked in grabbed and rubbed his chest and very frankly said...I'm very concerned. I've only got to see a few images but this kid needs a helmet because his transverse sinus artery is exposed (pic above as marked SIN. TRANS.) This drains the blood back down from the back of the head.

If he doesn't have protection and that gets hit; he could bleed out. What?! Why hasn't anyone else been concerned? We have, but we're just the parents with no medical knowledge except the doctorate degree I'm continuing to earn while I learn; currently working on neuroanatomy. He then tells us the tumor is stable in itself (yay!)...that the tumor is not fully responsible for the deterioration of his skull but that he has cranial dural ectasia. Ohhh what's that? How do you say that, and how is that spelled (notebook in hand)?? I try to write it down as he spells it out and can't, I've become dyslexia in the moment. He so nicely takes my notebook and writes it out. :) This new terminology has been the inside culprit causing pressure pushing out against the skull resulting in the thinning of the skull. Koda has several areas of thinning skull now that we look at it. Now we've got something else to "deal" with. He stated it could become very complicated and complex surgery depending on what he finds.

He calls in the orthopics lady regarding a helmet...she comes in and says ohhh no, I'm not suggesting to put my "institutionalized looking" helmet on him. She suggests we go out and buy something he likes off the shelf so he can design it, pick it etc. We couldn't order one because he had to have it to go back to school. When the surgeon announced he needed a helmet, Koda said, "I'm nervous. You know the kids at school will make fun of me." I appreciate this team thinking outside the medical box, having compassion for the "feelings" of a child, and trying to accomodate the best they can. #medicalsuccess

So we leave there Wednesday at 5 pm with this...we wait until next week to get confirmation of all that will actually happen but the plan is for surgery to fix the skull in January in St. Louis. There could be multiple other testing and procedures that he wants done such as another MRI, angioplasty, labs, etc. He must have time to look over all those images, and it's totally understandable. He spent 3 hours on our case with us getting an hour and a half of his physical presence in our room. Who does that? I know who ordained it! I'm so thankful for his frank-ness and compassion.

So I get home wiped out. I asked in prayer for help prioritizing all this info because I was swarming. I'm so thankful for every single prayer that has been lifted for us because they are being heard and delivered. We wake up on Thursday morning to run out to find a helmet. Quickly after 3 stores we're getting discouraged. Fifth store is Academy...while dad and him are trying on helmets, I go to look at some winter boots for him. I come back through, and somehow looked up on this shelf way higher than eye level. On that shelf sat one helmet by itself with a clearance sticker on it. I pull it down to look at it, take it over to the guys; Koda practically yanks it out of my hand. He puts it on, it's a perfect fit...he like it, and states "can we get it"? We said hold on, lets see if we can find more, maybe a different color. Of course not, it's an ordained helmet...there's not one single helmet like it in the store. $60 helmet, and we walked out with it for $17 along with some boots on clearance. #win #Godisinthedetails He won't take it off, he says he likes the pressure. #iknowafighter #endnf #neurosurgery #duralectasia #plasticsurgery #secondopinionscanbelifesaving

So last night, I decide to learn more about that new terminology of dural ectasia. I pray before researching for God to help me not get overwhelmed, protect me from things that have nothing to do with us, etc. At 11:11, I was overcome with peace because I found images that perfectly shared what I needed to understand visually. I found new information out about NF I had never heard as this new term is the 2nd on the list of associations to having been diagnosed with it. If this is truly in-fact a new diagnosis' for Koda it might also very well be the reasoning behind his incontinence and leg pain as well. We'll see...though we really don't need another diagnosis...it sure would explain a lot of things. #hopefulwevefoundananswer

So until the NF neurosurgeon calls next week, you have been updated. To God all the glory! We know your prayers are working!! Thank you so much to all that have invested emotions, time, creativity, support, finances, postage, etc to let us know we are loved!! #kodaskrew