The week I met my son...

for the first time without being prescription medicated for his autism and ADHD. There's no doubt that he needed something to help him since he was 3 years old especially if he was going to enter into a scheduled life of learning in public schools. He couldn't control any of the unique and outlandish behaviors, nonstop talking, there's a leaf or squirrel attention span, and anxiety through the roof.

(Quick update for those following our journey in regards to his skull that started back in November; feel free to read here if you haven't before. We have approval for the neurosurgeon, we don't have insurance approval for the plastic surgeon...how is this? Don't ask me! The insurance says it's not medically necessary. I don't call people stupid...but this is the stupidest/dumbest thing I have ever heard. For goodness sake, he's got a hole in his skull with a major vessel exposed. Whatever! They have drained me but they will not get me to quit. I'm guessing it is because we've met our deductible and they will have to cover it all. We are still just tentatively going to have surgery on April 21st. It's been a long time for this momma to wait. I want this over for his sake because he's concerned, and rightfully so.)

He's always had a great personality, but just like the commercial of the girl interviewing for the job...you got to have more than that. His personality, heart, and smile has definitely proven to be contagious if you can get thru the annoyances and quirkiness. It's hard to understand how someone can look so "ok" and so not be. On top of these diagnosis' he has a incurable genetic disorder that was by spontaneous mutation called Neurofibromatosis. If one struggle wasn't enough, when you build these together it's utter chaos. It's not his fault. It's not my fault. It's the cards we're dealt, and the journey that has taught me more than I could ever imagine.

This journey has put me on a path of research, and boy did I hate research papers in school. It's also been years of trial and error, with us still learning about him and ourselves every single day. I'll say some of the greatest discoveries have came thru an accident so to speak, or just flat tripped over it while walking it out. I've never been more thankful for a journey...not thankful he has suffered with all that he has, but what we've all learned from it.

The reason I title this post the way I did is because I really have never had a full week without him living life without prescriptions. Since February 2016 we've been on a quest to remove as many prescriptions as possible due to the abundance of side effects. You take one thing for a symptom, then you take another for the side effect of the first, and then you domino effect into a crash of chaos...that even the dr's can't help with because they don't know. When you are on (at one time over 20 prescriptions when he was on chemo) multiple prescriptions, no one has done studies of what happens when you do a combination of meds. They don't know the side effects of such recipes. His liver, stomach, esophagus, sleep, skin, and behaviors were all affected greatly. The chemicals in these prescriptions on top of the mix of them...was destroying him. We are not against prescriptions...we are against the over prescribing practices and band-aiding a condition without looking for the root.

Busted!

This is what set me out on the quest of finding the alternative. We did that through a long tedious year with multiple times of wanting to just give up. Over the last year we have gotten rid of 11 prescriptions for asthma, EXTREME restless leg syndrome, allergies, nerve pain, etc leaving us with 3 total meds which are for helping with ADHD and Autism. ***It's spring break 2017***...he has be able to prescription free since last Friday am (now Thursday). We got clearance from our doctor to try a full week of no prescriptions...granted he cannot be without help because he still has ADHD, NF, RLS, and autism. These diagnosis' aren't just going away. We have changed his diet, added supplements like magnesium, exercise, joint compressions, massage with raindrop technique, and a whole bunch of love & patience...and Young Living Essential Oils!

(ohhh gosh is supplements a journey in itself because these too have a horrible to great benefits. If you get a hold of an all chemical, cheap brand of supplements you are swallowing "nothing", and they don't absorb properly, hardly have any "whatever it is you need" in it, your body can't metabolize the type it is, etc. Just because it says magnesium...what kind of magnesium is it, and where did it come from?).

I've been 7 years looking for the best bang for my buck when it comes to the oils. Here's our story on that...my Facebook post. So with great welling up in my eyes and crocodile tears flowing down my cheeks, my heart is wrenching in sadness it's taken this long...I've met my son finally at almost 12 years old. I am getting to experience the "real" him, embracing the joy & compassion in his heart, with excitement seeing his passions/desires, fully grasping his creative and intelligent mind because he's calm enough to express himself fully without the distractions of life, anxiety of the world, and a sensory overloaded atmosphere. I have been blessed with insight this week, and all is well with my soul. I just know he's struggled for almost 12 years living this life...and now I can see his truth. No, we won't get to stay on this regime until after school is out due to many things, but I am awaiting summer in hopes all these last prescriptions will go away. I have video documented and photographed his behaviors this week to present to the Dr...so now as spring break ends I know without a shadow of doubt that God's creation of plants, trees, etc were made for our use...and they have benefited us greatly. I've never met a more beautiful person than my son. Thank you God for helping us all through this far!!

4 steps to NO MORE FOOD/SWEET Cravings (Step 4)

I'll apologize right now for being so late in posting step 4. I had to be sure that this was the step I could stand on and had experienced in changing our new way of life. I'm assured now! After experiencing two full weekends away from home and one was on us at the last minute with no time to prepare; I can officially say step 4 is Give Yourself a Break!

Good grief son, where is your other shoe while dad is yelling from the garage do you have everything ready to load? Uhh do you think I thought about grabbing food? No! So while last minute things happen in our lives it is imperative to have planned organic snacks such as mixed nuts, fruit, frozen cold pressed juice, protein/fiber balls, salads on hand at all times. Grab it and throw it in a cooler, lunch bag whatever. There is going to be a curve ball thrown at some point. I have never been so sure of this change now that I didn't have a plan. What an amazing learning experience and confirmation that #foodmatters and I was #hungryforchange. (click on links for awesome documentaries, recipes, and so much more; no I'm not being paid to advertise for them!)

Out the door we went, and we all ate horrible...back to the original processed foods, restaurants, etc to meet the demands of our stomach. Sure we could've stopped and got the better choices from a store, but we were so limited on time & funds that made it not possible. We had to eat CHEAP...but we didn't fall for McDonalds whoot whoot!! See I'm using an excuse...what I thought was cheap; now we're dealing with abdominal cramping, digestive issues, gained weight, and the lil' guy's behaviors are off the chart gain. Those side effects don't come cheap either...I''m a failure was the first thought! No I'm not...we fell off the track and now we have to get back on. It is very clear to me and this experience is a confirmation that nutrition, food types and choices make all the difference in the world.

So if you have fallen off track or maybe even derailed and felt like you've been left there to rust away; I've got good news...tomorrow is another day. Dust yourself off, pick yourself back up, and change your choices. Thankfully we've made it back home (very very broke by the way) and managed to have just $30 to go to the store. If you buy organic food...you know $30 isn't going to get much and we've got a week to live before payday. (Do I want to admit this, no...hell no! But I found that in my transparency other's gain. For that, I in my embarrassment will be humbled enough to say it can still be done)

So the scoop, we had either in freezer or pantry; 4 lbs of grass fed hamburger, a 2lb bag of organic pinto beans, a few apples, a tomato, left over gluten free birthday cake, 3 jars of half used and different kinds of salsa, a onion, rib bones, a pkg of quinoa and Kale, head of lettuce, cornbread mix,
and a grass fed beef heart.

We went to Aldi's this morning with our $30 and bought:Yes all organic, etc...

a. peanut butter
b. 2 pkg sliced ham
c. loaf of bread (Did you know that sourdough bread doesn't have added sugar...just a note)
d. 2 boxes of spaghetti
e. 2 jars of spaghetti sauce
f. Shredded grass fed cheese
g. 2 cans of refried beans
h. 2 pkg Basil and Tomato chicken sausage
i. 1 bag of blue tortilla chips


Mind you that's all we have...meals will be

Tonight:Taco Salad (put the rib bones in and roasted this morning and then on into the crockpot to make bone broth...cooks for 48 hours. Then took out the beef heart to thaw and marinate for 24 hours)

Tuesday: Beef heart with side of quinoa and kale

Wednesday: Spaghetti with basil and tomato chicken sausage

Thursday:Beans cooked in bone broth and cornbread

Friday: Pay day baby!! With two pounds of hamburger left over!

Sweet! Now I'll admit even with organic this is not the best of our meals nutritionally, but it's sure better than that restaurant and gas station food. I only shared this last info to prove that you can eat better even on a tight budget. Can't wait for whole fruit and veggies back in the fridge this weekend
....and more so for the garden to start producing. I hope and pray this helps somebody!

Give yourself a break...tomorrow is another day to dust off and do the best you can! Hugs!!

A new tumor (brain glioma)...

and growth of the plexiform neurofibroma sends us down a new journey of chemo. Koda's update. Please sign his guestbook.