Wednesday, November 22, 2017

Thanksgiving News

He really has stepped up beyond the necessary!
While enjoying the weekend with my daughter and son-in-law, I turned back from the front seat of the car to look at her, and I experienced the greatest pain (what I would call a pulled tendon) behind my left eye. Immediately my vision was impaired, but I didn’t realize how much until I tried to read anything containing words/letters. We had arrived back home, and when I went to follow a recipe for dinner found that I couldn’t read the instructions. The pressure had built and the pain increased over the next couple days and with my ever so restricted vision, I called the optometrist first thing Monday morning. The one I originally go to couldn’t get me in until Dec. 7th. I tried to research another, with much frustration because I couldn’t see to look for such online. My introduction to using Google voice search began. I was able to get the info & have it even call the number for me. WOW, technology really helped me out in a desperate situation. This doctor was able to get me in that day, so I went. I was able to drive, but not read signs, etc. Everything was so distorted and blurry, with that said; I have always had astigmatism and I was just assured that was part of the reason along with knowing from the last eye glass prescription that I was soon headed for bifocals. Hello 40’s…just one of the many developments is enough but it seems they tend pop up their ugly heads unexpectedly. Let’s just say I didn’t realize how many things have words/letters nor how much one “reads” throughout the day.

The testing came back with a definite need for bifocals but that wasn’t the issue that caused me to sit behind those different lens’ that day. One test, led to another, and yet another. The final one printed out a picture of my optic nerve which showed severe inflammation, so the Dr. started asking other questions about my gate/walk, dizziness, fatigue, muscles, etc. I explained some things that had been going on (that I never really took as a need of concern). He said, you are showing all the signs of MS (Multiple Sclerosis), and this inflammation is one of those…so I need to order an MRI ASAP so we can get you on some steroids for the inflammation. My first thought…I know what steroids do to me, and I AIN’T (English majors please rest as I did that on purpose) doing it because the side effects outweigh the benefits. He asked who my PCP (Primary Physician) was, and I wanted to answer Jesus…but I didn’t. I said, I don’t have one since we moved. I’ve had no reason to go to the doctor, so I never established one. He looked at me in a weird way, then asked who I would like to attain as one because he needed that to order the MRI. I just said, who do you suggest? I don’t know. He referred me, and even called that doctor to see if he could take new patients, etc. I’m pretty impressed with the care, detailed, and bedside manners of this optometrist. He came back with the info that I needed to stop by this other doctor’s office to pick up the new patient paperwork. I laughed, how the heck am I going to be able to read it to fill it out. I got the requirements done with the help of the receptionist, so the MRI got ordered. The possibility of being diagnosed with MS didn’t scare or concern me in any manner…it would have explained some things and I knew that it was just another story of God’s glory to be revealed.

As soon as I got home I wanted to research all about it but couldn’t. That right there has been the most frustrating of circumstances because that’s just what I do. I read, research, and read some more about all things pertaining to human life because I love it. The part that hurt me the most was when I would go to grab my Bible, open it, and almost cry because I couldn’t read it. My ever so loving husband was greatly concerned with the news, and was ever so patient with me while after a hard day’s work would come home to a wife needing answers…so he’d research the topics for me. This is so NOT his thing. I am so privileged to have such as blessing as him. He posted on my social media to give people a heads up of what was going on, answered people’s questions until it got to be too much (I’ve still got like 40+ FB messages unread at the time of this). I’m not ignoring you, I just don’t have the visual ability to read any of it. Matters of fact, I wouldn’t be writing this without it being zoomed at 500% and using voice to text.Thank you, thank you all whom have been so concerned, in prayer, called, texted & messaged to find out the updates…I love you! There is no doubt that I am loved.

I went for the MRI. Thank you for those whom prayed for that as I’m highly claustrophobic and IV sticks are the worst for me. I prepared though by making sure I was overly hydrated (hello toilet we are friends) and drowned myself in all that makes me calm & happy. Your prayers along with these added precautions…the IV went in on the first stick, and I fell asleep in the MRI so it can’t get any calmer than that. (They didn’t have any of the cool added technology like I’ve seen at other hospitals, fans, earbuds, movies to watch while in there, etc., so it was just me and that loud banging long donut).

Now wait…the waiting room whether at home or in the office seems to be the most time wasted in life. Waiting on results, waiting for a test, waiting for the appointment that was supposed to be 30 mins ago, waiting on the nurse, waiting on the doctor, waiting, waiting, and more waiting. Today (Wednesday, November 22, 2017) was supposed to be when I went to the new doctor to establish care & get the results of the MRI (that I found out yesterday was completed and read on Nov. 16th)…I growl a little. They called me yesterday to say the dr. is leaving town for the holiday and I’ll need to be rescheduled until Monday, Nov 27th. I growled a little more and increased my volume at this response, asking if anyone could at least give me the results. They said they hadn’t seen the report nor that I was even in the hospital system. I called the eye dr. next. He quickly got off the phone to find out what was going on. He called me back directly from his cell phone, first saying he apologized the hospital had not yet delivered the report but that it had indeed been completed since the 16th. He let me know that I have some issues that was detected by the MRI & that could very well along with the need for a new eyeglass prescription be the cause of my vision loss and distortion. I will need to see the other doctor for that, but that I do NOT have MS!!! Thank you God! Thank you for your faithful prayers! I’ll keep you updated as this progresses with the other information I received.

I have had moments of restored vision enough to text my daughters or husband, but only moments. Thankfully the pain has dissolved, but the pressure is still there if I try to read too much. The strain to focus on reading really does cause much discomfort. I miss reading, and had recently discovered Audible thru Amazon & love it, but let me say that I’ve yet to find any audible bible versions where the narrator wasn’t horrible to listen to. Good grief, if they believe He sounds like that…they don’t know my God. He has a personality, laughs, and has emotions. Those people are “BORING”!

So until I get new glasses (which I won’t be retested until Tuesday, Nov. 28th & given the prescription) I am going to continue to limit my online presence on social media. I will not be attending to FB messenger for sure, so if you have a message for me then please either send a message to Rick or send me a text & he’ll read it when he is home…or you are free to call me too (I cannot call you back unless I have a moment clear vision…or until I can get my “not so smart phone” to call you using voice. I’m trying to get that to work.) I have so much that I can't wait to share about this journey already. 

Happy Thanksgiving! Release the bitterness, envy, strife, un-forgiveness, and pride…Enjoy and love on those crazy family members, and don’t miss the opportunity to share the Good News of Jesus & Freedom through Salvation because there might not be another moment for such. Time is short and unpredictable. You are so appreciated and loved beyond measure.


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~Blessings!

Tuesday, November 7, 2017

Significant Novembers...

Every day I wake I have a joyful tear that rolls down my face because I get to continue to look my son in the eyes. I am more than thankful. See this time last year, I thought I was going to be headed down the path so many I know have already taken...and we had to jump onto a rollercoaster I didn't give permission to be on. You can read about that journey starting here

On the 2nd of November this year, Rick & I celebrated 16 years of being back together...that's another story for another day. No, not our wedding anniversary but being back in each others lives. It's also the same week a year ago that our son came to me to ask why he had a hole in his head. As I type this, my chest fills with pressure, and then I have to remember...we're not in that storm anymore. We have not only survived the storm, but we are Thriving! Only because of the precious mercy & favor of our Lord whom has given not only K (our son) a significant  & remarkable recovery but us a story of how faith moves mountains. As I've went through the pictures of this last year...wow, just WOW! 

We were loved on by so many people even strangers who didn't know us personally. We were allowed to "know" when the suggestions by the medical teams were not the road we were to take. Thank God, we listened. We now are on a peaceful journey of yet another hope, and by God's creation we are seeing life altering miracles daily. We are utilizing the organic compounds of what was given at the creation of the world, we will continue to do so with such fabulous results, and we are learning to love some new terminology I want to call "PMS" (Phenylpropanoids, Monoterpenes, and Sesquiterpenes). 

That is because this combination offers the following:
First, you clean the receptor sites allowing the proper transfer of hormones, peptides, neurotransmitters, steroids, and other intracellular messengers. (The Phenylpropanoids do that.)
Second, you deprogram or erase the wrong information from cellular memory stored in the DNA. (The Sesquiterpenes take care of that.)
Third, you reprogram the cells with the correct information so they can function properly. (The Monoterpenes do this.)

We are headed down a new road of epigenetics: the study of heritable changes in gene expression (active versus inactive genes) that do not involve changes to the underlying DNA sequence — a change in phenotype without a change in genotype — which in turn affects how cells read the genes.

We were perfectly made...and made with a body that wants, can, and will heal itself if it's just given the "conditions" in-which to do so. Faith...comes by hearing the Word, and on that Faith we build our trust in The One that has directed us down this path of unknown, but so so full of peace. 


Here's the few things he got to do for the first time in his life since surgery on May 8th...
1) ride the tallest (for us) ferris wheel in Branson, MO twice
2) caught his first bass & learned how to fish for them
3) got to see the solar eclipse looking thru a homemade cereal box
4) attend a hot air ballon show & get into the basket
5) he gained another brother-in-law
6) he got to build a dinosaur at build-a-dino
7) attended Science City twice in St. Louis
8) got to ride in an airplane
9) ride in a rental car
10) ride in a trolley
11) he started middle school
12) had the biggest personal firework show in our driveway
13) jumped over into men's shoe sizes
14) off all prescription and OTC medications
15) use dad's table saw
16) had his oldest sister here for weeks instead of days
17) shattered his Ipad (we're doing great without it)
18) got to see baby mice practically be born
19) got to help tear down walls in our home remodel
20) learned how to make homemade soap, scrubs, deodorant, body butter
21) learning how to be a barista at school coffee bar
22) An all day around KS waterfall tour
23) Participate in burial of great grandma's ashes
24) Participated in our church parade 
25) has a thing for girls...Lord, help us!



All is wonderful in the world, until you get the news...

3D Imaging so they could order the implant

We got to learn some new words




The puzzle piece (hole) that will never mean the same 
Helmet to protect the exposed Transverse Sinus until Surgery.



Twins...shaved for surgery
Day after surgery

Day after surgery

Day after surgery: Out comes drain tube

The implant
1 month post op
His first Bass! We were all proud!


Now