Thursday, September 2, 2010

Different outlook on life............

............after having a child w/ Cerebral Palsy and another with NF, ADHD, RLS, and PLMD. I also believe in Karma, I thought people stating kids/adults w/ all these alphabet diseases were in some type of hypochondriac disorder themselves. Then, I was faced w/ our precious Koda...........the flying monkey, bull in a china closet, can not sit down or still for "one" moment, chaos. :) I can smile about it now, but I was rather slapped in the face that these "Alphabet diseases" are real; well real in the sense that the medical world has given a name for such behaviors. Such disorders are not fun, they take work & strong interpersonal skills to deal with such an active body. You don't really get it, becuz that's not how you are..........

I was once told by another w/ ADD that the brain is like walking into a electronics department w/ all the TV's (you know like 100 tv's on in one place) being on different channels......and you want to be involved & look at all of them; you like all of them; my mind blows trying to have two conversations let alone trying to think about, be involved in, and liking each and every one of those "actions" going on.

I've also been told, he's a boy........he's supposed to be rowdy, running, etc. Yep, he sure is; but not to the point he hurts himself & others w/o any comprehension of doing such. When he jumps on every chair in the lobby and no discipline, attention, direction works; becuz he can only think about all those things in his head at once plus getting in trouble. Its like the he is the tv, and the remote is stuck on channel up/down back/forth constantly.........and my words of direction are in there somewhere but he can't stop on it long enough to think about the consequences let alone care. I saw the results of his brain activity........well it's the best and fastest ping pong game ever and never ending.

As I posted on Facebook though, I really have decided that Koda has a diagnoses of creative energy......its ok that the medical world wants to call it ADHD, so they can have a reason to prescribe drugs to make "themselves some $$ bonuses from the pharmaceutical companies", and make our kids get to the point "the world calls normal behavior".

Its all ok, but really every bad can be used for good! I believe things happen for a reason! I'm not saying that medication, docs, pharmacies, etc are not needed; they are needed and they have their place.

Koda is medicated for his creative energy, but not w/ stimulants like most that "alter the behaviors, spirit, natural given personality of a child".

If everyone sits down & is always quite.............what a boring world this would be. I know these types of people can drive others crazy; but it's ok! Its ok to be different, and "not normal"........who decides that anyway? Who would run the marathons for fundraising efforts such as NF, Cancer, etc.  or happen to be in the right place to save someones life........without such energy. We need people who are multi-thinkers on a dime, so decisions can be made at the last minute: for example, we need to save our country? I'm not making excuses or cover-ups to make myself feel better about having a child with such issues......but I am standing up for the spirit, personality, and/or natural nature of who we are inside & most of the purpose of what we are to become.

I never heard of public school homeschooling...........or virtual public school, well I knew that to get Koda out of "the troubled child" stage at school we had to do something or his spirit would be weakened if not totally crushed by no, stop, that's not right, wrong, sit down (when he can't), because he would be considered different, slow, special ed.......it's all ok, becuz we decided to home school him this year. I couldn't afford at the time to do a Christian based home schooling due to all the costs of supplies, etc. Plus with him being in a brick & mortar preschool last year; they did set up an IEP (Individual Education Plan); so he will continue to get services (therapy, etc), thru the school district.

We are one week in, and I am smiling at the progress........I am enjoying my child! I was concerned w/ the social skills he would need; but there are a great group of leaders, seasoned moms, etc....and even new ones; ready to get our kids together often to play. Matters of fact, we have our 2nd group play date tomorrow........he has looked forward to it all week & worked hard! I have more energy......wow it takes a lot to get a long drawn out boring story to be interesting to a boy that could care less; but we act out our books.......pics will be posted soon. Truly enjoying my relationship as his learning coach, and allowing him to be just what he is supposed to be.............FULL of LIFE!

A different outlook on life.............You have a purpose ......I'm positive it's all ok, and different is good!

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